My baby needs surgery.
As hard as we’ve tried to get her to eat more with medication, and increased calories in her formula, she still isn’t gaining enough weight.
My husband and I met with the surgeon the other day and he walked us through the procedure. Basically, they are going to patch up the hole which seems simple enough. But before they can start patching, they’ll need to stop her heart.
They are going to stop my baby’s heart.
She will be on a heart and lung machine, so blood circulation will never stop. I know this but, I’m having an incredibly hard time getting past the fact that, at just 3 months old, my baby’s little heart will stop beating.
Honestly, my brain stopped recording what the surgeon was saying after this. Luckily, during Lilly’s pre-op appointment, we will be walked through the procedure again.
Her surgery is scheduled for October 15th and we will be staying in the hospital for the rest of that week. I was happy to find out that she will stay with us in the same room the entire hospital stay, even when she’s in the NICU the night after surgery.
This surgery is extremely common and there’s nothing to worry about; I trust her doctor and her surgeon seems wonderful. I’m staying positive but, I hate that my little one already needs a surgery. She’s just too little for all this 😦 I wish so badly that I could take her place.
Please keep my daughter in your thoughts and send us good vibes. We could really use some more positive energy during this time.